Meet AlexAndrea! She is an avid dancer, and you can always find her busting a move! She has such an unbelievable fighter spirit and has accomplished SO much despite her diagnosis. Read on to learn more about her absolutely amazing accomplishments and her love for cuddling :)
1. To start off, can you tell me a little bit about AlexAndrea?
AlexAndrea is a very happy and lively 3-year-old! She has multiple congenital anomalies like pulmonary valve stenosis (a condition which narrows the pulmonary valve opening and slows blood flow), hypotonia (decreased muscle tone), clubbed feet, sleep apnea (breathing repeatedly stops and starts), Chiari malformation (when brain tissue extends into the spinal canal), and needs an NJ tube to eat and drink. Her diagnosis is so rare that it has no actual name and her condition is only one in five worldwide. Doctors said she wasn’t going to make it; however, she proved them wrong! After 8 months in the NICU and having undergone multiple surgeries including heart surgery, we were finally able to take her home.
2. What would surprise people the most about AlexAndrea?
People would be surprised by how well she dances! When she hears music, she’s always busting a move, which is why we always have something playing in the background during physical therapy! Music really gets her moving :)
3. What does AlexAndrea love to do? What is her personality like?
AlexAndrea LOVES to cuddle and dance! She is very happy and playful, and she is such a fighter!
4. What are some of AlexAndrea's best strengths?
AlexAndrea thrives on being helpful and learning how to do things herself. She is also very resilient and doesn't let anything limit herself from accomplishing amazing things!
5. What is a recent accomplishment/milestone of AlexAndrea?
AlexAndrea has accomplished some pretty amazing things this year! She is able to sit by herself, she recently just started crawling backward last week, and she finally said “mama”!
6. What are some of your favorite resources as a parent?
Youtube! Through our lifestyle channel, I was able to connect with other special needs families, especially special needs mommies. Youtube is such an unbelievably supportive community, and I highly recommend it for any other special families out there.
7. What has AlexAndrea taught you?
AlexAndrea taught me so much about life! The biggest thing she has taught me is to keep pushing forward no matter the limitations because we can still learn to thrive, even with life's imperfections.
8. If you could tell the world one thing about AlexAndrea, what would it be?
AlexAndrea is God's miracle who came to show us to never give up, to trust, and to have compassion for others.