Meet Nathan! This mighty two year old loves to binge watch Mickey Mouse and Shrek, and he recently just learned how to walk! To learn more about his lung transplant, his absolutely AMAZING motor skills, and the wonderful community his family found through social media, read the interview below!
1. To start off, can you tell me a little bit about Nathan ?
Nathan is 2 years old and he was born with a rare heart condition called Super Cardiac TAPVR. He went for his first open heart surgery at two weeks old, and from the 1st surgery, he developed a very fatal disease called pulmonary vein stenosis. We tried having a second surgery, but that did not help with the PVS. When Nathan was 10 months old, he received a double lung transplant. He had many complications after the transplant and spent over 9 months in the ICU. However, Nathan is truly a warrior, and his obstacles have not stopped him from being the loving, active, and cheerful boy that he is!
2. What would surprise people the most about Nathan?
Nathan is an extremely happy human! Looking at him he might seem a little different, but he doesn’t act that way. You would never know that he has been through so much.
3. What does Nathan love to do? What is his personality like?
Nathan is constantly on the go! He recently learned how to walk, so he’s just all over the place! He loves playing, learning and watching Mickey Mouse and Shrek :)
4. What are some of Nathan's best strengths?
Nathan’s fine motor skills are amazing - we never thought this would be his strength since he’s been sick for so long but he caught up so quickly!
5. What is a recent accomplishment of Nathan?
Walking!!! Just a few months ago Nathan couldn’t stand up, but now he’s a walking toddler. It’s difficult to keep up with him and his vent but we manage to chase him around the house with it :)
6. What are some of your favorite resources as a parent?
Other parents have been such a supportive community, especially families going through similar struggles as us. Social media these days makes it easy to connect with many families around the world.
7. What has Nathan taught you?
Nathan has taught me to alway find the positive in any hard moment and always finding something to celebrate no matter how small.
8. If you could tell the world one thing about Nathan, what would it be?
He never stops smiling :)